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Many people with epilepsy have concerns about what pregnancy planning looks like. Many medications may not be safe or need to be changed, and the dosages of some medications may need to be adjusted during pregnancy. Being pregnant when you have epilepsy doesn’t have to be scary, and we will try to demystify this for you.
The single most important thing to do if you have epilepsy and would like to consider pregnancy planning is to discuss this well in advance with your epilepsy specialist. This includes discussing what your current use of contraception is, and when you plan to stop contraception and start pregnancy planning. Folic acid is an important supplement to take prior to pregnancy, and it is particularly important if you are taking some of the antiepileptic medications that lower your folic acid level. Also, always let your obstetrician know the medications you are on, and the adjustment plan moving forward.
Once you have an approximate date to start pregnancy planning, your doctor may recommend switching the anti-seizure medication to a safer option for pregnancy. It’s important to note that some forms of contraception may also be contraindicated with some anti-epileptic medications, and in some circumstances your contraceptives may have to be adjusted as well. Once you are on the appropriate medication for pregnancy, your specialist will ask you to obtain a blood tests to make sure that the level of the medication in your blood is therapeutic.
We don’t want to risk the possibility of you having a seizure during pregnancy. We always try to limit the risk of seizure, but during pregnancy you are considered more high risk. The blood levels of your anti-seizure medications will be checked monthly and we may need to make adjustments based on these results. When you are pregnant you metabolize medications differently, and the blood volume in your body increases. These factors sometimes lower the level of the medication in your blood, even if you have previously been on a stable dose of the medication for many years.
Most pregnancies, even with epilepsy are able to be delivered vaginally, however there may need to be discussion with your obstetrician and epilepsy specialist about some of the details of delivery. When you are in the hospital the levels of your medications will be monitored closely again, and further adjustments may be necessary. If you are considering breastfeeding, there are generally fewer concerns about medication safety, however we do encourage you to closely follow up again with your epilepsy specialist 1-2 weeks after delivery.
At Neura Health we are here for you during this joyous (and scary!) time, and we will do our best to lead you through this process.
Neura Health is a comprehensive virtual neurology clinic. Meet with a neurology specialist via video appointment, and get treatment from home.